I had been riddled with
anxiousness, worry and stress over what was happening to my son for two days
straight. Not being able to hold him, touch him… knowing he was an hour and a
half away and there was no way for me to get to him. It was eating me up. All I
wanted to do was scream, to tear up the hospital room. To throw things and
break glass; to hit someone, anyone. I really didn’t care who. But the physical
pain ripping through my abdomen every time I moved kept me from finding a
release from the misery.
I was angry. Everything
ALWAYS worked out in my life, but I was having a hard time seeing past this
feeling.
Surprisingly, as soon as I
left the hospital, there was a feeling of calm, patience. While I was very
aware of what was ahead… the hospital, the tubes, the diagnosis, the treatment…
it was almost as if my husband and I were headed out of town on one of our
random “hey, lets take a road trip anywhere” weekends. We went home and packed
a bag for what we couldn’t imagine would have been more than a week, got in the
car, grabbed some lunch and my pain killers, and talked about anything except
the fact that our son was in the hospital, clinging to life. The only things
that reminded me, was that pain every time I moved… so I did my best to stay
still and pretend it wasn’t there.
Hospitals scare me; they
intimidate me. All the twisty-turny hallways and levels and people, happy and
sad, full of life and on the brink of death… I’ve never felt comfortable in a
hospital. Standing in front of the one that Chase was fighting for life in, I
wasn’t sure how to feel. I knew what I was about to experience was something no
one could ever prepare you for; this tiny 6lb baby, knocked out by drugs, tubes
running in and out of him, puncture wounds on almost every surface from where
they had to take blood or spinal fluid. The fear of not knowing anything about
my son overrode my fear of hospitals. I knew from the beginning, every time we
had a doctor tell us his vitals plummeted, every time we got a phone call
telling us he’d had a seizure, every time we were asked to give permission for
another test, I KNEW that all he needed was human contact… to know his momma,
the energy he’d been grown surrounded by, was there with him. I just knew that
me being there would help.
I was glad that my husband
had already been to the hospital and knew where to go. It meant I didn’t have
to think about anything other than getting to my baby boy. I painfully followed
him in to the hospital (knowing my doctor had told me to take it easy and rest
as much as possible), around the corner to the elevator, up to god knows which
floor, and down the hall where we had to be given permission to enter the NICU.
I mindlessly followed as my husband opened the door, led me to the sinks were
we washed our hands, dried them, and then followed it up with a dose of hand
sanitizer. We then went to “suite D” where my son and 3 other babies were being
cared for by around the clock nurses.
The first “bed” we passed
held the tiniest little baby I had ever seen, and was a fighter by nature. His
parents had two teenagers, and the pregnancy wasn’t planned… the mother,
already in her 40’s, went in to labor at work at 21 weeks. He’d been in the
NICU for weeks and weeks, his parents coming to visit every few days. I remember
thinking, “how can they just leave him here, so tiny and alone.” My husband
reminded me that they had to work, they had two other children, and it was
difficult to see your baby so tiny and helpless (although you would never know
how helpless he was by the vocal chords he had on him.) My sons bed was next to
the tiny little boy, so I didn’t notice the other babies until later.
Instead, all I saw was my
little wiggle… who although he seemed to dwarf the other babies, still seemed
so small. I stood over his bed, unsure if I was allowed to even touch his tiny
toes or fingers. I sanitized my hands again. He laid there so quietly, the
machines breathing for him, wearing nothing but a diaper and covered in tubes
and band aids to stop the bleeding from where they’d poked his little heels and
arms. The bed heater radiated warmth so they could monitor him visually. The
machines beeped, keeping track of his oxygen levels and heart rate. Beep. Beep.
Beep. He looked so calm, so peaceful.
The nurse came over and
introduced herself. She was the one who was there when he’d been admitted. She
informed us that they try to keep the same nurses with the same babies so that
they could stay up to date with their progress. My first question was if they
knew yet what was wrong with him and if she knew when he’d be released.
Her response indicated that
she’d been trained well and had been doing her job for a long time. “The
doctors will be by in a little while to update you on his condition. I do know
that we’ve been keeping him sedated because he’d been fighting his breathing
tube.” I think she could tell her answer didn’t satiate me. “He’s got a huge
fighting chance,” she said, “He’s a full term baby.” I looked around at the
other babies… preemies… tiny, tiny babies. Each one laying in the bed, alone,
no one at their bedside on a Sunday afternoon. My heart ached for them.
“Can I touch him?”
“Of course! We encourage it!
These babies always know when their parents are nearby, and the ones who have
the physical contact, tend to get out of here faster. And the faster we can get
him out of here, the better. ” She said with a smile.
I sanitized my hands one more
time and then very gently placed my hand on the top of his head. That act alone
calmed me like nothing ever has. I was touching my baby and although he didn’t
physically nuzzle in to my hand, I almost felt as if he did. I’d held him
inside of me for nine months, and then he’d been ripped away from me for almost
3 days; I finally felt whole again.
The nurse pulled my husband
aside, asking him if he thought I needed a chair. I think she could tell by the
way I was hunched over his bed, supporting myself, that I was in pain. They
brought a chair over and I struggled to hoist myself on to it while remaining
in contact with my little boy. I’ve never felt so very helpless in my whole
life. I had failed my son and couldn’t fix him; I needed my husbands help
getting on to a chair, and I didn’t know where to go to find these doctors to
give me answers. For a woman who prides herself on her strength, independence
and ability to get through any obstacle, this was torture.
I sat there, caressing Chases
head, whispering to him that I loved him and that he just needed to get better
so that we could take him home. Suddenly, another baby’s monitor started
signaling that she was in trouble. The sound tore through the quiet. My heart
began racing as a team of nurses rushed to her bedside, checking her vitals and
watching to see if she would stabilize herself…. She did. All I could think
was, “Thank god my baby is full term.”
The doctors finally came by
to introduce themselves and talk to us about Chase. The medical jargon flowed
from their mouths as I tried to grasp the meaning of anything they said. Chases
nurse was standing nearby, making notes, giving her input and updating the
doctors on Chases stats and vitals. My head was swimming. The doctors shook our
hands and left, and I looked helplessly at my husband. This is one time in my
life I am grateful that my emotions are easy to read. The nurse smiled kindly
and explained to us in plain kindergarten style English that the doctors still
didn’t know why Chase was so sick, but they were treating him with broad
spectrum antibiotics and running tests. The spinal tap revealed nothing, he was
scheduled for a brain scan of some sort to see if the seizures had done any
damage, and they were still waiting for him to mess his diaper. If things went
well, we might get to take him home the next Sunday. I asked what they’d been
feeding him since I hadn’t been there to provide the colostrum that I was
collecting. “Oh, don’t worry honey, he doesn’t need any food yet. Since he’s
not regulating his blood sugar on his own we’ve been supplementing with a sugar
mixture through one of these IV’s.”
Antibiotics. Chemicals. Brain Scans. Poking and Prodding. This is not
the way anyone should experience their first few days on earth. What had I
done? How had I failed this miserably?
****************
Soon after the doctors left,
my husband went down the street to the Ronald McDonald House to see if they had
any room for us. We still didn’t know where we were going to stay for the
night, but in reality, that was the furthest thing from my mind. I could sleep
on the floor at his bedside and be just fine… and since parents could visit at
any and all hours, I doubt the nurses would say anything. While he was gone, a
grief councilor came by. She told me about all of my options as a parent with a
child in the NICU: There was, of course, counseling, the Ronald McDonald House,
activities, coupons and discounts… there were even church groups that took
requests for hand made quilts and blankets. That’s when I noticed the crocheted crosses hanging
on my sons’ bed, along with a note from a minister who had visited and prayed
over him. She handed me a card and invited me to contact her at any time. I
nodded, promising to attend an activity for parents the next day, knowing that
I wouldn’t show up.
Once she left, the lactation
consultant came by to see if anyone had shown me the “pumping room.” I shook my head no and told her that I had a
pump of my own. She smiled and told me that the ones that they provided to moms
here were far better than anything you’d buy at Walmart. She led me to the
room, handed me a kit and showed me how to work the equipment. The rhythmic
sound of the machines was calming. The private area became a quiet place for me
while I was there.
My husband returned,
encouraging me to leave my sons side to get some food. The Ronald McDonald
House had a room for us; they only asked that we chip in on the household
chores and not have food or drinks in the room. I told Chase, still sedated,
eyes closed, that we would be back later. We slowly made it back to the car and
over to the Ronald McDonald House where we unpacked our things, signed some
paperwork, and were given a tour. We ate and returned to our sons bedside until
my husband reminded me that my doctor told me to rest as much as possible. We
left his bedside around 11:30pm, and I fell in to a deep, dreamless sleep.
The next day was the same as
most of the other days in the hospital. One day rarely stood out from another,
and there is little I can tell you other than we woke early, had breakfast at
the Ronald McDonald House, went to the hospital where we were updated on Chases
condition, told that they still didn’t have any answers but were hopeful. I
pumped and stored breast milk, still hopeful that I’d get to have that
connection to my son, my husband reminded me to drink water and eat, we’d have
lunch and dinner in the hospitals cafeteria, and then spend the whole afternoon
at Chases bedside, talking to him and touching him.
On day #5, they told us that chase had progressed well enough that they were going to take him off the ventilator, and if all went well, we would get to hold him that afternoon. He had opened his eyes a time or two, we'd been able to change his diaper and assist in any way a parent was allowed, but I was still yearning to hold my son. We went to lunch and when we had gotten back, Chase was off the ventilator and breathing on his own. We were so very proud. The nurse came over and asked if we'd like to hold him. I sat in a chair close to his bed, and the nurse gently placed him in my arms.
Oh my gosh he was tiny! But he was awake and looking at me and my heart just melted. I was painfully aware of the incision from the c-section, but I did everything I could to support and hold my son, despite the pain I felt. After a few minutes, I asked my husband if he would like to hold our son. The nurse came and took Chase so that I could get up and leave the chair to my husband. Once he sat, the nurse placed the squirming baby in his arms. Thats when Chase smiled. He looked at his daddy and smiled the biggest smile you could imagine. Now I know that they say babies that young don't actually smile, but there is no denying that Chase felt complete and utter joy when he was placed in his fathers arms.
The rest of the afternoon was filled with elation. I just KNEW that we'd be home with our son by the end of the weekend.
The next morning was so very different from the previous few. My milk had come in and i'd awoken in the middle of the night laying in a puddle. This was it. My son was off the ventilators, and my milk was finally in. That meant that soon, we'd be able to try this thing called breastfeeding. Our morning felt much lighter, we took our time with breakfast and made it to the hospital around 10am. Smiles plastered across our faces, we entered the NICU, washed our hands, doused them in hand sanitizer and made our way to Suite D. Thats when the calm, happy morning was shattered to pieces.
Chases nurse was by this bed, working on him. She looked at us with such concern that my heart immediately dropped. She said he'd been having to work really hard to get a breath. She'd already paged the doctors. As she said that, suddenly every alarms attached to our little boy began screaming. We immediately stepped away as a team rushed in. Within seconds, there were at least 7 professionals around his bed, alarms still screaming just looking at him. His vitals had dropped and he'd stopped breathing. No one was touching him. Why wasn't anyone doing anything?! They were all just staring at him... apparently waiting to see if he'd recover on his own.
We stood there helpless. I wanted to scream at the medical team to DO SOMETHING! They just stood there. My son wasn't breathing, every machine was pushing out numbers and stats. If I didn't remember what feeling utterly helpless was like, then I was quickly reminded...
